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 Post subject: GRAZAX Hay Fever Therapy
PostPosted: 28 Nov 2012, 12:27 
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Hello

I have recently started GRAZAX hay fever therapy. I wondered whether anyone else had any experience of this.

I take a tablet every morning which I place under my tongue until it melts. I then get a swollen tongue and very itchy ears but this subsides gradually over a couple of hours.

I have to take this *every day* for three years. I hope I will last the course!

Fiona


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PostPosted: 13 Dec 2012, 16:42 
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Location: Sidcup
Hi Fiona.

How are you getting on with Grazax.

I work at Allergy UK and it is interesting that you have been prescribed it as I have heard it is hard to get hold of.

Best wishes

_________________
Helpline Advisor, Allergy UK


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PostPosted: 07 Jan 2013, 16:06 
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Raegan wrote:
Hi Fiona.

How are you getting on with Grazax.

I work at Allergy UK and it is interesting that you have been prescribed it as I have heard it is hard to get hold of.

Best wishes


Hi

I am getting on OK with it. Initially I had swollen tongue and itching in ears and throat when I took each tablet, but this seems to have subsided now.

I was referred to an allergy clinic at Medway Maritime Hospital, and I was considered suitable for their Grazax programme, but you are right about it being hard to get hold of -- when I tried to refill my prescription the pharmacist couldn't get hold of it, and so I was without it for a week.

Best wishes


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PostPosted: 18 Jan 2013, 18:52 
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Hi, I also take grazax (March 2012). I was passing out at least 4 times a day, and ended up in hospital. I was diagnosed with "panic attacks" then eventually tested for allergies. It was then that my consultant found I had numerous allergies i.e. tree/s pollen, dogs, cats and my grass pollen count was off scale. I take Fenofexidine, Montekulast, Cetrizine, Ventoline, Symbicort, Budesonide plus Grazax! I'm told that I will take Grazax for 3yrs, but may have to take it for the rest of my life (in breaks) as the symptoms can occur!? can anyone enlighten me on this matter?


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PostPosted: 08 Jul 2013, 12:11 
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Hi,

I work for the manufacturing company who make the Grazax tablets. I know of people who after completing the 3 year course are still hay fever free two years later. :mrgreen:
How hard was it to get prescribed onto Grazax, is it available on the NHS as I feel I could do with being on it as all the normal hay fever tables have no effect or very little for me.
Some days I'm on a whole pack of Claritin and still suffering sneezing, runny nose and watery itchy eyes. I hate hay fever. :cry:


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PostPosted: 29 Apr 2014, 10:21 
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Hi Fiona,
I had extreme hayfever for many years.

I was referred to a specialist by my GP and she recommended Grazax and I took it as part of a trial at the Royal National Throat Nose and Ear Hospital. This lasted 3 years and I had only very mild side-effects in the early part of the first year. If you are getting swelling I would check back with you Consultant just to be on the safe side. You can try putting it in front of the teeth instead of under the tongue which works better for some people.

I had to pay for most of the treatment privately which was expensive as unfortunately the NHS (at least where I live) would not pay for it.

After the 3 years of Grazax treatment I have about 6 years or more with my hay fever very much better - reduced to levels that could be easily controlled by normal prescription medication like desloratodine, nasal spray and eye drops.

That was great. (I still had to be sensible and not go for grassy picnics in June but it meant I could live a normal life and go outside in the Spring / Summer.)

after about 6 or 7 years my symptoms started to get bad again and I went back to the Allergy Clinic - now I am taking Grazax again this year and paying the full cost myself (unfortunately). This year I found "Boots Direct" did it cheapest but it was very hard to order with the web site (it did not work) so best to phone them up and they are very helpful. There are a few online companies selling the tablets and the prices do vary slightly.

How are you getting on with your treatment.

Jon


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PostPosted: 23 Jun 2014, 14:22 
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Just a note to say that Boots Direct just raised their price for Grazax from £75.11 for 30 tablets to £96.14 for 30 tablets. Quite a price-hike and for no good reason that I can see. Grazax still appears to be available from several other online pharmacies in the UK for around £78.

The NHS seem to be very slow to accept that this treatment works and is cost-effective for severe allergy patients. Has anyone managed to get Grazax on the NHS in their area yet?


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PostPosted: 02 Mar 2015, 13:19 
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I have just been given Grazax by my Doctor in Herts. It was run through The London Chest Hospital, where I was referred.

It is a nightmare getting approved for it and I nearly missed my start date.

Fingers crossed it works for me, not getting much side effects, just a sort of indigestion feeling and sore throat.


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PostPosted: 02 Mar 2015, 13:27 
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Good luck with the treatment Joe. I have had virtually no side effects and the treatment has been a "miracle" cure for me.

I am finding Grazax is getting harder to obtain on private prescription in the UK as fewer pharmacies are stocking it, which is a pity, since it is so effective. (The NHS do now admit it works - but they don't yet accept the argument that it is cost effective! So I have to pay for my pills)

I bought mine this year from the Oxford Pharmacy who have supplied me a month's supply so far.

Jon


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PostPosted: 03 Jan 2017, 23:58 
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Joined: 03 Jan 2017, 23:53
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My little boy started Grazax on 30th December and he's doing so well taking it. He has some side effects itchy mouth runny nose cough upset stomach his appetite has reduced and he's quite tired. I'm keeping a close eye on him though. We've waited 4 years he was 4 going in 5 when it was first suggested to us as an option xx he has hayfever meds everyday of the year xx


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