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PostPosted: 02 Feb 2010, 05:09 
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Joined: 01 Feb 2010, 01:25
Posts: 129
Hello Lisa!

Thanks for replying to my message! Since posting on here I managed to find an email address for the makers of DAOsin so sent them an email asking if it was availabe in NZ yet. They said no, but it would be soon and gave me the name of the agent, so that is something at least. There is no doubt in my mind that I have HIT as this morning I just had the rice flakes for breakfast without the blueberries and I didn't have the burning sensation afterwards. I am trying to follow a low histamine diet in the meantime. I take a calcium channel blocker for angina and I read online that a different CCB (Verapamil) inhibits the production of diamine oxydase so I don't think there's going to be any doubt about it. I can live with HIT and gluten intolerance but I do hope I don't have fructose intolerance also. I sympathise with you over trying to get a sensible reaction from your doctor. It is so frustrating when you get treated like a neurotic woman! Fortunately with HIT you can at least look after yourself and don't need medication. The same goes for fructose intolerance and gluten intolerance, but it would be nice to have an official diagnosis so we can at least say: I told you so! Good luck!


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PostPosted: 12 Feb 2010, 15:53 
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Joined: 12 Feb 2010, 00:06
Posts: 1
Hello

I have found reading this forum very helpful and thought I would post a reply and introduce myself. My name is Kelly and I was diagnosed (I see in loose terms) with a histamine intolerance in 2008. After attending an allergy clinic on the Isle of Wight repeatedly for skin and RASP tests repeatedly to no avail, it was my Husband who happened to stumble on an advice leaflet on HIT in the waiting room and asked if it could be that. After trying the diet for a month with a relief of symptoms it was concluded that it might be the culprit, however It still wasn't officially placed on my records.

Two years on and I am still trying to manage this frustrating and dibilating condition. I have to be honest and say that I have been in denial a wee bit, and not doing all I can to help myself, but I find it very frustrating that so little is known about it and its affects, and that there seems to be very little support or understanding from GP's. I have recently found that my symptoms are way out of control and I constantly feel like I have the Flu and nausua etc, what has made matters worse is that due to my values I wish to be vegetarian and this is near on impossible on a HIT free diet. There seems to be no way for me to be able to get any protein in my diet, as I can't tolerate seeds or beans either for some reason.

I intend to visit the doctor next week to ask to see a nutrionist and I am hoping they might help. I hope that I have not come across as a wingger, as most of the time I do stay on top of things, but Its just very rare to find an outlet to talk about having HIT so I guess I am taking advantage. Well thanks for listening and take care all.

Kelly


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PostPosted: 18 Feb 2010, 13:48 
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Joined: 18 Feb 2010, 08:50
Posts: 102
Hello Genny,
I was interested to hear that you were able to have a Diamine Oxidase test done through your GP. Is that in the UK? I went privately for mine.
Best wishes,
Hilary


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PostPosted: 18 Feb 2010, 14:20 
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Joined: 18 Feb 2010, 08:50
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Hello,
I'm also Histamine Intolerant. After months of research I was finally "officially" diagnosed with HIT last February by Dirk Budka, Histamine Specialist. He did a specific blood test to determine my Diamine Oxidase level. He also found Small Intestinal Bacterial Overgrowth (SIBO) through a hydrogen breath test which was greatly contributing to my histamine load. I'm getting rid of the bacteria naturally as my condition was originally caused by long term use of antibiotics as a child/young adult so I didn't want to go down that route again.
Dirk practises in London.
I am currently part of a trial on a DAO supplement called 'Histrelief' developed by Dirk.
I tried the Austrian capsule supplement (Daosin/Histame) but had a reaction possibly to the fillers/other ingredients. It's also too expensive!
During my early research of this miserable condition I read "Dealing With Food Allergies" by Janice Vickerstaff which has a helpful section on HIT. In a personal e-mail Dr Joneja also told me that chemical/hormonal changes at menopause can cause HIT.There seem to be few specialists in the world and little research unfortunately.
It's comforting to know there are more 'sufferers' out there although I wouldn't wish it on anyone!
I eat a lot of free range turkey as it's lower in histamine than other meat. Otherwise my diet is boring and limited.
I've also read a lot about the magic of magnesium recently as this is such a crucial mineral and helps to control histamine. It's also necessary for hundreds of enzymes but I don't know if DAO is one of them!! Most of the world is mag deficient apparently so I've increased my dose to see if it helps!
A quote from a study on rats: "Duodenal DAO activity decreased gradually and reached half the value of controls on the eighth day of Mg deficiency".
AND another source "Sensitization and increased histamine production are associated with Mg deficiency"
Hopefully there will be more research to help us all.
Best wishes,
Hilary


Last edited by David on 19 Feb 2010, 00:28, edited 2 times in total.
Link to website removed on advice. We will reinstate it after investigating the validity of this practitioner


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PostPosted: 20 Feb 2010, 11:37 
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Joined: 10 Nov 2009, 18:10
Posts: 31
Hello there,

I got my diagnosis via a GP in Austria, which I’m afraid doesn’t help anyone here. But I know that it is possible for any GP here in the UK to get the test done by a lab for GPs . The test itself will have to be paid for privately, but it does not cost a fortune. This can only be done by referral from the GP. If anyone is stuck and needs help concerning this, call the Helpline (01322 619898).

Hope this helps,

Genny


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PostPosted: 21 Feb 2010, 22:53 
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Joined: 21 Feb 2010, 22:09
Posts: 184
hilaryj wrote:
Hello,
I'm also Histamine Intolerant. After months of research I was finally "officially" diagnosed with HIT last February by Dirk Budka, Histamine Specialist. He did a specific blood test to determine my Diamine Oxidase level. He also found Small Intestinal Bacterial Overgrowth (SIBO) through a hydrogen breath test which was greatly contributing to my histamine load. I'm getting rid of the bacteria naturally as my condition was originally caused by long term use of antibiotics as a child/young adult so I didn't want to go down that route again.
Dirk practises in London.
I am currently part of a trial on a DAO supplement called 'Histrelief' developed by Dirk.
I tried the Austrian capsule supplement (Daosin/Histame) but had a reaction possibly to the fillers/other ingredients. It's also too expensive!
During my early research of this miserable condition I read "Dealing With Food Allergies" by Janice Vickerstaff which has a helpful section on HIT. In a personal e-mail Dr Joneja also told me that chemical/hormonal changes at menopause can cause HIT.There seem to be few specialists in the world and little research unfortunately.
It's comforting to know there are more 'sufferers' out there although I wouldn't wish it on anyone!
I eat a lot of free range turkey as it's lower in histamine than other meat. Otherwise my diet is boring and limited.
I've also read a lot about the magic of magnesium recently as this is such a crucial mineral and helps to control histamine. It's also necessary for hundreds of enzymes but I don't know if DAO is one of them!! Most of the world is mag deficient apparently so I've increased my dose to see if it helps!
A quote from a study on rats: "Duodenal DAO activity decreased gradually and reached half the value of controls on the eighth day of Mg deficiency".
AND another source "Sensitization and increased histamine production are associated with Mg deficiency"
Hopefully there will be more research to help us all.
Best wishes,
Hilary


I am DYING to go see Dr Budka!!!


Last edited by pineapplegirl on 07 Mar 2010, 00:05, edited 2 times in total.

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PostPosted: 21 Feb 2010, 23:45 
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Joined: 18 Feb 2010, 08:50
Posts: 102
Hi there,
I had a hydrogen breath test with Dirk Budka showing that I had severe bacterial overgrowth which increased my histamine load. I've become intolerant to so many things that I couldn't take the natural supplement that Dirk gave me. So I took Olive Leaf Complex, Kyolic Garlic and now digestive enzymes. I've read Dr Ellen Cutler's book and Karen Defelice's excellent book on gut health. Enzymes have really helped my intolerances.
My gut bacteria had diminished by nearly 50% in six months.
I've recently increased my magnesium supplements and have made slight improvement with my HIT.
No I don't have tinnitis but I've just been reading about magnesium helping tinnitis. Try Googling magnesium and tinnitis?

I hope you manage to get an appointment with Dirk eventually, he's excellent.

Best wishes


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PostPosted: 22 Feb 2010, 00:05 
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Joined: 21 Feb 2010, 22:09
Posts: 184
hilaryj wrote:
Hi there,
I had a hydrogen breath test with Dirk Budka showing that I had severe bacterial overgrowth which increased my histamine load. I've become intolerant to so many things that I couldn't take the natural supplement that Dirk gave me. So I took Olive Leaf Complex, Kyolic Garlic and now digestive enzymes. I've read Dr Ellen Cutler's book and Karen Defelice's excellent book on gut health. Enzymes have really helped my intolerances.
My gut bacteria had diminished by nearly 50% in six months.
I've recently increased my magnesium supplements and have made slight improvement with my HIT.
No I don't have tinnitis but I've just been reading about magnesium helping tinnitis. Try Googling magnesium and tinnitis?

I hope you manage to get an appointment with Dirk eventually, he's excellent.

Best wishes


Wow, glad to hear you're feeling better and thanks so much for getting back to me.

I'm going to check out that book now...thanks again for all the great info!

I'll have to make my way back to civilisation to see Dr B. Glad to find someone who has seen him!


Last edited by pineapplegirl on 07 Mar 2010, 00:06, edited 2 times in total.

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PostPosted: 22 Feb 2010, 09:31 
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Joined: 18 Feb 2010, 08:50
Posts: 102
Hi again,
It's great to find other people in the same boat, although I wouldn't wish this on anybody. At the beginning of all this for me (3 yrs ago) I thought I was the only person on the planet who had this bizarre illness. 2 allergy specialists told me I was over anxious! The first one was quite dismissive and at the time of seeing him I had been given bright red steroids following a severe "allergic" reaction (histamine overdose)!! I also react badly to colours/e-numbers/preservatives. Recently,I mixed some food dye into sugar paste on my hands and the next day I felt awful, my histamine levels were up! HIT creates anxiety, it's beyond your control.
Best wishes,
Hilary


Last edited by hilaryj on 23 Oct 2010, 21:08, edited 1 time in total.

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PostPosted: 22 Feb 2010, 10:49 
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Joined: 21 Feb 2010, 22:09
Posts: 184
Genny, could you tell me more about fructose malabsorption? Does it affect blood sugar in any way?


Last edited by pineapplegirl on 07 Mar 2010, 00:06, edited 2 times in total.

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